The following links provide information that can help doctors and parents involved:
The portal for rare and orphan diseases.
Childhood and Orphan Diseases Association (Association Enfance et Maladies orphelines)
European Society for paediatric gastroenterology, hepatology and nutrition
International registry of congenital porto-systemic shunts
Association des malades des vaisseaux du foie
Association of Parents of Children with Liver Disease - Association des parents d'enfants malades du foie
Association of Pediatric Liver Disease - Association Maladies Foie Enfant (AMFE)
Fund to help children with liver disease and their families - Fonds d’aide en faveur des enfants malades du foie et de leur famille.
TACKERS brings together children from around the world who have undergone transplantation to participate in camps where they meet other children who have had the same experience
Swisstransplant is the national body responsible for organ donation.
Hypnosis in Pediatrics
Hypnosis explained to children